As a child, my father would always tell me to be careful of the sun and to wear a hat. He loved lying out in the sun and consequently had many small skin cancers removed from his scalp. Being young and carefree I didn’t always do as I was told.
This story is one of love and hope, and is made possible by developments in melanoma research. Five and a half years ago, my husband Roger was diagnosed with melanoma.
I was always aware of melanoma growing up being the only ginger, pale kid in the family. My mum always made me cover up and I remember every year getting Avon sunscreen in my Santa sack!
My name is Grahame Pilgrim, aged 72 from the north side of Brisbane. I have worked in the sun most of my life and I would like to share my story about being diagnosed with melanomas.
Mark clearly remembers the day he received the news that he had a stage 3 melanoma on his second toe that required immediate treatment.
I have an aggressive stage IV melanoma skin cancer which has metastasised to my lungs, bones, liver and lymph glands. I was facing my last Christmas with my young children in late 2013. I have three children – 6, 12 and 14 years old. In January 2012 I had a mole removed and was told
I am Trevor Chaston, a retired farmer but still active on a farm at Benayeo Victoria (just across the border from Naracoorte in S.E. South Aust.) I have been a farmer all my life and therefore have spent many hours out in the sun and in the early years without sun protection apart from a
My name is Ben Kerslake. On the 19th of November 2014, I underwent a scan for a severe headache. I was immediately admitted to hospital when a golf ball sized tumour in my brain and many other throughout my body were discovered. Following brain surgery to remove the main tumour, I was diagnosed with stage
In 2011, 25 year old Emily Clohesy was worried about a mole on her back and went to her doctor to have it checked. It was diagnosed as a stage 3 Melanoma. Emily had to have her lymph nodes removed from her groin and now lives with lymphedema. This is Emily’s account of how her
Saved by a spot-on stranger A tap on the back at the cricket may well have saved Meagan’s Snewin’s life. Meagan, an avid sports fan was at Adelaide Oval in 2012 watching a West Indies Test match with girlfriends when she felt a tap on the back and a male voice said: “Excuse me, I’m
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AMRF acknowledges the traditional custodians of the land each of us work on. We pay our respect to Elders, past, present and emerging, and through them to all Aboriginal and Torres Strait Islander peoples.
Australian Melanoma Research Foundation (AMRF) respects and is committed to protecting the privacy of the people whose personal information it collects. We collect personal information about individuals who are employed by us, our donors, our volunteers, other supporters, allied associations, consultants and service providers.
Whenever we collect personal information, we will identify ourselves as AMRF and ensure people are aware of why we are collecting information and how we plan to use it.
The type of personal information AMRF usually collects and holds includes names, addresses, telephone numbers, email addresses, donation date, reason for donation, merchandise orders and other information such as health related information pertaining to AMRF research and program delivery. This information may be collected in person, via our website on the secure payment gateway, as well as other sources.
When people visit our website, or download information from it, the following information is recorded by Google Analytics:
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In the event where an individual shares unsolicited personal information that AMRF would not have collected for the purposes outlined above that information will be destroyed or de-identified as soon as is practicable.
We collect and use stakeholder’s personal information to carry out the functions and activities of AMRF and to comply with our legal obligations, to maintain and update our records and to help us manage and provide our services.
We may also use information to ask for support and to keep people informed about the ways in which our donors and supporters help us to make a difference to raise funds for research, awareness and early detection programs. People have the right to opt out of any communications from AMRF. This will not stop them receiving receipts and other transactional communications as required by law.
We may disclose personal information to third parties who assist us to perform functions on our behalf (such as commercial mail preparation services, this information is permanently deleted by the provider upon completion of the service and confirmed in writing of such). These external service providers are under a duty to maintain the privacy and security of your information in line with this Privacy Policy and to use your personal information only for the purpose for which it is disclosed.
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If people become aware of any inaccuracy in the personal information, we hold about themselves, they are encouraged to contact AMRF so we can update any personal information we hold.
Where it is lawful and practicable, we will allow individuals to deal with us on an anonymous basis. For example, if we receive a telephone enquiry, we will not require that the enquirer gives us their name, although depending on the nature of the enquiry, we may not be able to answer it unless they do.
We can also accept gifts and other forms of support anonymously. However, provisions contained in taxation legislation require AMRF to collect the name of the donor if the donor requires a tax-deductible receipt.
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AMRF
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We take your privacy concerns seriously. Where you express any concerns that we have interfered with your privacy, we will respond to let you know who will be handling your matter and when you can expect a further response. We may request additional details from you regarding your concerns and may need to engage or consult with other parties in order to investigate and deal with your issue. We will keep records of your request and any resolution.
For information about privacy generally, or if your concerns are not resolved to your satisfaction, you may contact the Office of the Australian Information Commissioner at www.oaic.gov.au and on 1300 363 992.
